SB1398112th GA (Historical)Introduced

Amends TCA Title 68.

This bill provides for certain institutions maintaining and sharing information regarding treatment of patients 18 years of age or younger who are diagnosed with any form of cancer. Under this bill, an institution that desires to be a participating institution must issue a written statement of participation, to be submitted to the commissioner of health. The statement must also either be posted by the institution on a website accessible by the public or forwarded by the institution in writing to every hospital in this state that has in excess of 100 beds and provides inpatient care to patients under 18 years of age. A participating institution will maintain all essential treatment information with respect to patients admitted for care after January 1, 2022, or following issuance of a statement of participation, whichever is earlier. "Treatment information" means the following items of information, with respect to a given patient: (1) All prior zip codes where the patient has resided from birth and the period that the patient resided at each zip code; (2) Date of diagnosis; (3) Date of recurrence of cancer, if applicable; (4) Diagnosis; (5) Drug therapies administered; (6) Entry into clinical trials; (7) Images taken, whether by X-ray, MRI, CAT-Scan or other means; (8) Outcome of treatment; (9) Radiation administered; and (10) Zip code where the patient resided at the time of diagnosis. Upon receipt of a written request by another participating institution, a participating institution must provide all requested essential treatment information to the requesting participating institution within specified timeframes, detailed in this bill. A participating institution may satisfy a participation request by providing a requesting participating institution access to a database containing the essential treatment information requested by that participating institution. The database may be on the internet, on a proprietary network, or in any other configuration that permits access by participating institutions at the discretion of the participating institution using the database to satisfy participation requests. This bill details procedures to be followed when a request for information cannot be fulfilled in whole or in part. An advisory board will provide nonbinding guidance with respect to implementation of this bill. The appointees will be selected as follows: two members will be selected by St. Jude Children's Research Hospital, if it is a participating institution; two members will be selected by the Monroe Carell Jr. Children's Hospital at Vanderbilt, if it is a participating institution; one board member will be selected by each additional participating institution located in this state; and two members will be selected by the governor to represent patients and other interested members of the public, as determined by the governor at the governor's discretion. The commissioner of health and each of Tennessee's appointees to the national conference of commissioners on uniform state laws will be nonvoting members of the advisory board. The advisory board will have a chair, vice chair, and secretary, to be elected by the members of the advisory board. The advisory board will meet once per year and at such other times as the advisory board deems useful, to be determined at the discretion of the advisory board. The advisory board will, at its discretion, discuss ways and means whereby participating institutions can expeditiously maintain treatment information, fulfill participation requests, and otherwise contribute to increasing the seamless flow of vital information among participating institutions. The members of the advisory board will not be compensated by the state or any subdivision thereof for their participation on the advisory board or for expenses incurred in connection with that participation. The requirements of this bill will be in addition to any imposed by federal law or the law of this state. This bill states that it will not slow, inhibit, or restrict transfers of information among participating institutions, between participating institutions and other entities, or between participating institutions and the public.

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Overview

This bill provides for certain institutions maintaining and sharing information regarding treatment of patients 18 years of age or younger who are diagnosed with any form of cancer. Under this bill, an institution that desires to be a participating institution must issue a written statement of participation, to be submitted to the commissioner of health. The statement must also either be posted by the institution on a website accessible by the public or forwarded by the institution in writing to every hospital in this state that has in excess of 100 beds and provides inpatient care to patients under 18 years of age. A participating institution will maintain all essential treatment information with respect to patients admitted for care after January 1, 2022, or following issuance of a statement of participation, whichever is earlier. "Treatment information" means the following items of information, with respect to a given patient: (1) All prior zip codes where the patient has resided from birth and the period that the patient resided at each zip code; (2) Date of diagnosis; (3) Date of recurrence of cancer, if applicable; (4) Diagnosis; (5) Drug therapies administered; (6) Entry into clinical trials; (7) Images taken, whether by X-ray, MRI, CAT-Scan or other means; (8) Outcome of treatment; (9) Radiation administered; and (10) Zip code where the patient resided at the time of diagnosis. Upon receipt of a written request by another participating institution, a participating institution must provide all requested essential treatment information to the requesting participating institution within specified timeframes, detailed in this bill. A participating institution may satisfy a participation request by providing a requesting participating institution access to a database containing the essential treatment information requested by that participating institution. The database may be on the internet, on a proprietary network, or in any other configuration that permits access by participating institutions at the discretion of the participating institution using the database to satisfy participation requests. This bill details procedures to be followed when a request for information cannot be fulfilled in whole or in part. An advisory board will provide nonbinding guidance with respect to implementation of this bill. The appointees will be selected as follows: two members will be selected by St. Jude Children's Research Hospital, if it is a participating institution; two members will be selected by the Monroe Carell Jr. Children's Hospital at Vanderbilt, if it is a participating institution; one board member will be selected by each additional participating institution located in this state; and two members will be selected by the governor to represent patients and other interested members of the public, as determined by the governor at the governor's discretion. The commissioner of health and each of Tennessee's appointees to the national conference of commissioners on uniform state laws will be nonvoting members of the advisory board. The advisory board will have a chair, vice chair, and secretary, to be elected by the members of the advisory board. The advisory board will meet once per year and at such other times as the advisory board deems useful, to be determined at the discretion of the advisory board. The advisory board will, at its discretion, discuss ways and means whereby participating institutions can expeditiously maintain treatment information, fulfill participation requests, and otherwise contribute to increasing the seamless flow of vital information among participating institutions. The members of the advisory board will not be compensated by the state or any subdivision thereof for their participation on the advisory board or for expenses incurred in connection with that participation. The requirements of this bill will be in addition to any imposed by federal law or the law of this state. This bill states that it will not slow, inhibit, or restrict transfers of information among participating institutions, between participating institutions and other entities, or between participating institutions and the public.

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Sponsor

Unknown

Details
Session

112th General Assembly

Introduced

February 11, 2021

Subjects
075048232290

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